Great story. Thanks... I really needed something like this precisely now at this exact moment.
My 3,5 year old daughter (Aurora) spent the last week in the intensive care (neurological unit) due to a mystical and non-defined neurological attack/breakdown. She had this initial attack/seizure and breakdown less than 2 weeks ago at her doctors office during a routine visit for what appeared to be a light spring cold (not at all acting strange, crying or anything really extraordinary beforehand - jut slight fever, runny nose and a bit tired, which is unusual). But we went to her ordinary physician (GP) just to be on the safe side anyways. She smiled and said “Bye Daddy” (CoVid restrictions now allow only one parent inside the doctors office here in Poland) when she left our car and went into the office with her Mother/my wife.
But a mere 20 minutes later, my suddenly hysterical wife comes running out with an unrecognizable Aurora in her arms. She is having serious cramps, her neck is in an awkward frozen backwards position and she has totally gone in a catatonic state whilst making awful sounds. We DRIVE to the hospital ultra fast "Aurora is having a neurological attack - we cannot wait for an ambulance" my wife Karolina says repeatedly. I drove like a maniac, under horrific circumstances, through a busy downtown traffic in my 400+ hp Jaguar, reaching the hospital pretty fast (but it seemed like ages) - which was fortunately pretty closeby. But that is the first time ever my wife yelled at me to drive faster. That is for sure.
Well there - she was in the ER within seconds and under their care. She was by then passed out and remained so for several hours. It came straight Out of the Blue. She was therafter sedated in isolation at the intensive care unit at the neurolgy clinic at the hospital for a few days. Karolina was there with her (only one parent applies here as well). But, after a multitude of tests - they still do not know what it was. They did multiple cat-scans (MRI +) of body and brain and the brain is seemingly fine. And every other test you can think of. They thereby excluded that it was a stroke, aneurysm, heart attack, epileptic attack or something like that. Originally they thought it was a heart attack as her EKG was at first off the charts. She also at first had very high CRP levels, but they subsided quickly and are now normal.
When she was released from the hospital the following statement was issued: "
We will take no more tests as we have found no serious deficiencies with or disease in Aurora. We are very relieved that Aurora is seemingly fine", and then added that "t
he human body is not completely known yet, so this could be a one time attack connected to her ongoing light infection, exhaustion maybe also combined with fears. We may never therefore know what happened or why." So I guess that was it by the so called PROs conclusion. But... the head doctors at the hospital (upon her release) immediately and relentlessly wanted to put her on a 2 year plan of medication treatment for epilepsy - despite the fact that all the epilepsy tests were negative. Auroras GP however disagreed with this treatment and diagnosis. She was - good to remember - also under their medical ward for almost the entire seizure (~25 minutes) - yet they still have not been able to determine what it actually was and what caused it. They are but mere drug dealers it seems! Furious was too light of a word right tosummarize my state ofmind. 4 sho! . We naturally refused this "
offer" - to their pathetic vocal protests
We now think it is possibly something COVID related (she had COVid for 6 weeks last autumn - but she tested negative now/but no antibodies test taken). She is still right now very weak, sore,vomits randomly and has unfortunately had several minor relapses/seizures/passes out. Just to point out, she was also diagnosed with selective mutism this spring (after having CoVid) as she suddenly refused to talk to anyone at all in her daycare for over 3 months. Which was never a problem before. But that suddenly subsidead and the diagnosis was then reversed by a second professionals opinion. Nothing is simple it seems. Damn...
But many professional people that I know, outside the normalized system, believe it could either be multisystem inflammatory syndrome in children (MIS-C - which is almost certainly derived from her previous CoVid infection) - or something entitled encephalitis. I dunno. Sorry for the totally irrelevant RANT btw...
