One is my immunity. I basically have none (no t cells as one example among other thing I don't want to get into). Getting a cold is like a death sentence now. So I meet with her the 19th to figure out a plan for that. The Mayo part is the nausea, pain, vomit, no appetite gastro issues where I cannot leave bed some days. I have celiac but this is waaaaaaay worse than those issues. I have waited a year to where I cannot stand it anymore so it is partially on my waiting so long. I was able to get in quick for them so I assume they saw something through the medical records I had sent. So it is a 2 stage issue I have that may or may not be connected. Some days are really rough, especially when traveling. I don't eat for days. It is just not normal.
That is the long and short of it. And.....pot is all that has really helped the nausea. The pain is untouchable by drugs it seems. I just want my life back. I want to golf, hike, work out, bike, go birding. I just stay home because it is embarrassing to not control when I vomit. I am really really down and cry at times when I am alone and can (like typing this). But I am trying to stay positive and hope I can work through it. The immunologist is a rock star and she has helped me have hope. I am not giving up hope!!
