He far outlived the average age for someone with progeria, most don't make it out of their teens, and he dedicated his life to becoming a molecular biologist to study his disease and try and advance treatments and maybe a cure.
Do give you an idea he is the 4th longest living person with the disease that is known.
A list of the 9 oldest progeria survivors
- Chad Wedekind (1973 to 2012)
- Margaret Casey (1956 to May 26, 1985)
- Leon Botha (June 4, 1985 to June 5, 2011)
- Sammy Basso (December 1, 1995 to present)
- 5. Michiel Vandeweert (June 13, 1998 to present)
- Claudia Amaral (1999 to present)
- Mickey Hays (June 30, 1972 to June 30, 1992)
- Devin Scullion (August 1996 to January 23, 2017)
- Megan Nighbor (June 2000 to present)
